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Living With Parkinson's

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He Came to Me


He came to me in moments, he came to me in days
He came to me in silence in the most peculiar ways
He changed my life forever, he altered every move
He shifted my perspectives in some ways I cannot prove

He offered me a window where I gaze to view the world
I had a new awakening when truth had been unfurled
I do not heed his warnings, I rarely speak his name
And yet I know that life for me will never be the same

He grasped onto my being, and I at once became
A victim of his ravage, a prisoner to his game
An innocent receiver, the target of his quest
The host of a new parasite who means to cause unrest

He steals my precious moments, he pilfers my desires
He's tossed my sweetest dreams into the hot and wild fires
But little does he understand the gifts he has bestowed
In spite of all the dues I've paid for debts I never owed

Disease is like an albatross suspended round your neck
And also like a dove that sings in ways I didn't expect
For every bitter struggle comes a moment etched in time
Of vivid thoughts and wondrous things to which I once was blind

With every binding clutch he holds, a part of me he frees
With every rope he tightens, my heart is more at ease
For every moment stolen comes a moment more divine
In which I truly treasure all the love I know is mine

Much weaker are my muscles now, and slower is my pace
And sometimes I display the mask of stiffness on my face
By now this sly intruder surely knows my grave demise
But does not comprehend the gleam of joy within my eyes

It shines out from my spirit, it glows from deep inside
It is the light of God that for too long I had denied
For every petal withered, there's a bud that waits its time
For every flower stolen, a new bloom upon the vine

For every thing I can't recall. a memory still remains
The more I live, it seems the greater joy my heart contains

Changing


My footprint does not represent a footstep of my own
I feel my hands are hands that don't belong to me alone
My mind is not the one that was bestowed to me at birth
The only thing that still remains is beauty of the earth

My arms are now too weak to lift the smallness of a child
My feet don't care to tread the lengthy distance of a mile
My table is a place where with deliberateness I dine
The only thing that stays the same is love I know is mine

My simple tasks are finished at a slightly slower pace
And I can see the shadows of concern upon your face
For things are changing gradually, it's obvious to me
That the only things unaltered are the rhythms of the sea

The seasons come and go and spin forever round the sun
The things you take for granted are the things that come undone
Nobody need explain the upward path that lies ahead
The only thing that doesn't change, is red of cardinal red

As long as roses open to the light of early morn
As long as each sweet child cries for life when it is born
As long as I can hear a grandchild whispering my name
I'll be in peace and comfort knowing all has stayed the same

The Quiet Spirit


Who is this quiet spirit who has come into my world
Creeping slowly towards me as his mysterious traits unfurl
Discourteously intruding without asking to come in
With no consideration for the person who's within

He walks in silent footsteps, both steadfast and precise
And slyly interrupts the daily rhythm of my life
He deliberately alters my step, my gait, my hand
And manifests himself in ways that I can't understand

But the ruinous disease failed to realize from the start
That he may control my movements, but he can't control my heart
And that, my friends, is why I have come to realize
That his destructive nature will not be my demise

In fact I think I'll thank him for the favors he has shown
He forced me to consider certain failures of my own
He made me realize my life was full of useless stress
And revealed to me the treasures with which I'm truly blessed

He opened up the sky to me, and shown a light inside
The window of my soul to view convictions that I hide
My heart feels strangely more content in very special ways
I savor every moment now of every single day

I've discovered things about myself which never came to light
Expressing thoughts for me had been a constant losing fight
So timid and misunderstood, I always felt apart
And now I feel the urgency to open up my heart

Rarely a letter did I write, seldom a note I sent
So difficult it was for me to say just what I meant
But suddenly poetry came flowing from my pen
And thus this verse to tell the world how truly blessed I am


TOUCH ME

(Thoughts from a Nursing Home)


So warm is the touch of your hand pressed in mine
So long since I've felt this affection divine
That rush of elation I'm craving so much
That comes with the smallest and gentlest touch

In the light from my window, your lovely face glows
You touch me, and depth of your honesty shows
I've not been bestowed such affection in years
I can feel my face smile through oncoming tears

I was only a name to you, never a face
And now you have blessed me with loving embrace
You've come to my bedside so anxious to find
An aunt that the others had all left behind

You touch me and new life springs into the earth
You touch me and life has new meaning and worth
When you cradle my hand, it's my heart that you hold
So heavy a burden for a seven-year-old

The path of my life will soon come to an end
But your mother has promised to come back again
The footsteps now laid out before me are such
That they'll linger a bit just awaiting your touch

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